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March 2012 “Creating a Vibrant Community” Volume 2 Issue 9 8 Our West End Newsletter Volume 2 Issue 9 Our West End Newsletter Councilmember Cleta Winslow 404-330-6047 City Hall Information 404-330-6000 Sanitary Services 404-330-6333 Code Enforcement 404-330-6190 Housing Programs 404-330-6390 Sewer Operations 404-624-0750 Traffic & Transportation 404-330-6501 Crime Stoppers Tip Line 404-577-TIPS Narcotics 404-546-4245 Drug Hotline 404-546-2650 Police Zone 1 404-799-4287 Police Zone 4 404-756-1903 Councilmember Cleta Winslow Presents: Important City Hall Numbers Author Raises Awareness about Rare Childhood Illness By Brent Brewer A wet winter of temperature extremes was a breeding ground for a particularly nasty cough - an uncontrollable “barking” cough that could lead to vomiting one’s food. It caused many a neighborhood kids a sick visit to their local pediatrician. Christopher Harry, 3, also caught the cold; however, he has a metabolic condition called LCHADD (see About LCHADD on page 7). He has gotten sick in the past where he refused to eat regular food and a special medical formula gave him a specific amount of fat and nutrition while he recovered. When he wasn’t able to even keep his special medical formula down, he got really sick and his body started breaking down muscle. For the first time, Christopher and his parents, Ryan and Stephanie, spent a week in the hospital. Stephanie Harry wrote and co- illustrated a book, My Special Body, to begin the important conversation with her son about his condition in the safety of their home. To aid with the conversation, the book contains kid-friendly questions and activities. It was published by Emory University . She hopes that every child with this metabolic condition will have access to this book. In the midst of trying to riase awareness about LCHADD, Stephanie is also trying to promote the coverage of dietary necissities for children with metabolic disorders. Unfortunately, insurance companies would rather pay for multiple, expensive emergency room visits (>$100,000/ year), than cover the cost of a year’s supply of special nutritional formula ($8000/year). The insurance company thinks that the consumer, like you, should pay for this oversight. The newsletter is published monthly. 1000 copies were printed in March 2012. Copies are hand-delivered, free- of-charge, to all residents in the Historic West End neighborhood. Copies are also available at West End Library and West End Print Shop. Our volunteers: Denise Blake, Brent Brewer, Stephanie Harry, Beth McBee, Paulette Richards and our many neighborhood distributors. To advertise, submit stories or distribute, contact Brent Brewer at 404.447.0282 or email@example.com. About The Newsletter On The Cover 1: In recognition of Women’s History Month, the Auburn Avenue Research Library will host the exhibit, Time to Heal by neighbor Leisha Starchia. March 1, 2012—April 29, 2012. 2,4,5: Scavenger Hunt: West End Park Sculpture, Marta Station West End, Architectural element on Lawton house. 3: Every Wednesday at 5pm, Ahkbar Imhotep hosts Toastmasters at Capitol City Bank and Trust on Lee St. 6: In April, Wrens Nest will host Alliance Theatre’s The Tranquil Tortoise and the Hoppity Hare for ages 18 months— 5years. To learn what you can do to support insurance coverage of special medical formula and find more information about childhood metabolic conditions like LCHADD, follow Stephanie Harry’s blog at http://harryfamilyblog.blogspot.com. On book’s purpose: “ to encourage a conversation but also to contain the conversation, so after the book was over he could go off and just be a little boy.” 1 3 4 5 Existing J.C. Harris Building New Building 12/10 2 6 1 3 4 5 2 6 2 Our West End Newsletter Volume 2 Issue 9 Councilperson Cleta Winslow presents: We’re back! Welcome to our Civic Engagement issue: Remember to vote on Tuesday, March 6th. Sponsor our historic institutions with your patronage and membership dollars. Take a stand on an issue this year. Support WEND! Brent Brewer Managing Editor Publisher’s Corner Our West End Newsletter 7 What is LCHADD? Our Neighborhood: West End Historic District Date: Tues. March 20, 2012 Time: 7:30 AM to 10:00 AM Location: Empire Board of Realtists 686 J. E. Lowery Blvd. SW Atlanta, GA 30310 “Rethink West End: Visioning Work Sessions for Improving the West End Business Corridor” Join West End businesses and property owners, the Atlanta University Center community and professional planning and development specialists in creating a new vision for the West End Business Corridor. For more information: SAVE THE DATE! LCHADD is a “genetic” condition which means that children with this condition will not “grow out” of it. Their condition is just as much a part of who they are as the color of their hair or eyes. Children with LCHADD cannot break down long chain fats and use them for energy and therefore are on very specialized diets, including medical formula. For example, Christopher Harry,3 1/2, can consume only five grams of fat through his food, must eat about every two hours during the day to keep his energy up, and supplements his diet with MCT oil and cornstarch. Expanded in 2007, the Newborn Screening Test (where they screen a drop of your baby’s blood at birth) now screens for several metabolic conditions like LCHADD. Before the expanded newborn screenings, children with LCHADD most often ended up in the hospital within their first year of life in severe crisis or died of SIDS. Children see special metabolic doctors several times a year and they check his blood work to make sure he does not have too much fat build up (which would gather in his liver and around his heart and create serious problems). If children with LCHADD don’t eat enough food, their body tries to use fat for energy. Due to their metabolic condition they are unable to use fat for energy so their body starts to breakdown muscle instead. Muscle breakdown is very dangerous. It not only can make you feel lethargic, but the by- product myglobin can lead to kidney failure. For all that dietitians and clinicians have learned about LCHADD, there is still so much that they don’t know! These kids have the capacity to thrive and do so well when “on the right diet” but more about what that means requires more research President’s Corner Candlelight Picnic and Concert, Wrens Nest May 5, Cinco de Mayo. Tickets $25 or whole tables for $250. Decorate your table with candles and flowers; bring your own fancy picnic and wine. WEND provides the Entertainment. This is a neighborhood celebration, but its OK to invite guests to join in and see how Historic West End gets it on. For ticket information come to the WEND meetings or call any officer. Same day Tour of Homes, do both and make it a full day in West End. Carl Nes 2012 WEND President 6 Our West End Newsletter Volume 2 Issue 9 Our West End Newsletter 3 By Brent Brewer West End lore has it that new homeowners stay in the neighborhood for less than 36 months. If this myth is true, long-term renters who have been in the West End beyond this three-year period and who have invested themselves in the community would make the best homeowners. In 2006, I had the opportunity to interview two of our friendly West End neighbors, Ryan and Stephanie Harry. On my walk with Ryan and Stephanie around blocks adjacent to the West End Park, Ryan greeted every neighbor that passed us by name. Ryan teaches at the University Community Academy in the Anderson Park neighborhood (currently as a Kindergarten teacher at M. Agnes Jones ). He coaches a basketball team for neighborhood teenage boys, West End Ballers. Stephanie has worked with domestic violence victims and was a Girl Scout Leader. They are all around great neighbors whose home was a safe haven for kids. The then-newlyweds came to the West End from Pennsylvania as participants of a service program. After their one-year program, Ryan says, “West End became home to us.” Ryan and Stephanie rented a duplex and an apartment in the West End for approximately three years before they decided to purchase a home in West End. When Ryan and Stephanie decided to purchase a house, they wanted to remain near the West End Park where they had a personal connection. Luckily, due in part to mortgage fraud, Ryan and Stephanie had lots of vacant houses from which they could choose. After a five month housing search, Ryan and Stephanie settled on the most affordable, structurally sound, Craftsman-style house that was nearest the park. As the first family to settle on Oak Street in 2006, the Harry’s led the way to a near complete housing recovery on Oak Street (see OWEN Volume 2 issue 8, page 6). In 2008, Christopher Harry was born. Like his dad, he is a tallish boy, but has his mother’s brilliantly blond hair and easy smile. At three and a half, he is the model preschool eater: small low-fat meals- plenty of fruits, vegetables, grains, beans and lean meats. We are lucky to have them in our neighborhood. When W.E. Met Harry (Family) Excerpts taken from October 2006 OWEN issue, From Renters to Homeowners ... ... the Harry’s led the way to a near complete housing recovery on Oak Street. 4 Our West End Newsletter Volume 2 Issue 9 Our West End Newsletter 5 Remember No. 7, But Don’t Forget to Support All Our Historic Institu- Firestation No. 7 After three years of waiting, there are rumblings in city hall that the station will return in 2012. Let’s keep an eye on the 2012 City budget to see if there is an allotment for the re-opening. As always, express your concerns to our councilpersons, and neighbors, Cleta Winslow and Ceaser Mitchell. Post Office on Oglethorpe was placed on the list of retail outlets being investigated for closure by the government. Congress will make their recommendations in May. Write Congressman John Lewis’ office. Tell the office that we don’t support closing the post office because of the high volume of patrons from it’s close proximity to Marta and it’s location in the historic district. Wrens Nest There are three ways folks can help the Wren’s Nest: 1. Experience a storytelling performance on a Saturday at 1pm. 2. Tell your friends about the Wren’s Nest. 3. Purchase an annual membership. What is a CSA? CSA = Food Producers+ Food Consumers + Annual Commitment to Each Other Consumer makes a full payment at the beginning of the growing year and in exchange for supporting your local farmer you receive a basket of bounty. Order Your CSA today! Advantages: Eat fresh, naturally grown food with all the flavor and vitamin benefits. Get exposed to new vegeta- bles and new ways of cook- ing. Visit the farm that grows your food. You can even help grow it yourself. Develop a relationship with the farmer who grows your food. Keep your money in your local economy. Support a Small Business . Patchwork City Farms (PCF) is a small multi -family owned urban farm located in the Historic West End. Patchwork City Farm’s mission is to work with local lanholders, public and private, to create a sustainable, naturally grown local food system. Patchwork City Farms d themselves in the community would make the best homeowners. In 2006, I had the opportunity to interview two of our friendly West End neighbors, Ryan and Stephanie Harry. On my walk with Ryan and Stephanie around blocks adjacent to the West End Park, Ryan greeted every neighbor that passed us by name. Ryan teaches at the University Community Academy in the Anderson Park neighborhood (currently as a Kindergarten teacher at M. Agnes Jones ). He coaches a basketball team for neighborhood teenage boys, West End Ballers. Stephanie has worked with domestic violence victims and was a Girl Scout Leader. They are all around great neighbors whose home was a safe haven for kids. The then-newlyweds came to the West End from Pennsylvania as participants of a service program. After their one-year program, R